Mother’s Awareness regarding Palliative Care for Children with Autoimmune Inflammatory Bowel Diseases.

Gaber Hassanin Ali, Samah; Mohamed Abd-El-Aal, Ebtisam; Abdallah Moursi Afifi, Huda

doi:10.21608/jnsbu.2025.435263

Mother’s Awareness regarding Palliative Care for Children with Autoimmune Inflammatory Bowel Diseases.

Authors

¹ ICU specialist supervisor in EI Mataria teaching Hospital

² Prof. of Community Health Nursing Faculty of Nursing- Benha University

³ Assistant Prof. of Community Health Nursing Faculty of Nursing- Benha University.

10.21608/jnsbu.2025.435263

Abstract

Background: Inflammatory bowel disease is characterized by chronic inflammation of the gastrointestinal tract. Palliative care is indispensable care that improves the quality of life of children with autoimmune inflammatory bowel diseases. Aim of study: Was to assess mother’s awareness regarding palliative care for children with autoimmune inflammatory bowel diseases. Research design: A descriptive research design was utilized. Setting: The study was conducted at Outpatient clinic, Naser Institution Hospital, Cairo. Sampling: A purposive sample was used which included 96 mothers. Tools: Two tools were used: First tool: A structured interviewing questionnaire to assess the socio-demographic characteristics of the studied mothers, personal characteristics of children, children medical history, mother's knowledge regarding autoimmune inflammatory bowel diseases and palliative care and practices of mother regarding palliative care for their children with inflammatory bowel diseases. Second tool: Scale of mother's attitude towards palliative care. Results: 47.9% of the studied children diagnosed as ulcerative colitis, 56.3% had no family history of the disease. 45.8% of the studied mothers had average total inflammatory bowel diseases knowledge level, and 42.4% of the studied mothers had average total palliative care knowledge level, in addition; 73.96% of them had satisfactory total reported practices regarding palliative care, Also, 90.7% of them had positive attitude about palliative care for the children with inflammatory bowel diseases. Conclusion: There was a statistically significant relation between mother’s total knowledge and highly statistically significant relation between total practices and mother’s attitudes regarding palliative care for children with autoimmune inflammatory bowel diseases. Recommendation: Develop instructional guidelines for mothers about palliative care, and care of their children with autoimmune inflammatory bowel diseases based on the evolvement of the international evidence-based criteria in mothers and child health setting.

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