Burden of Care among Family Caregivers of Children with Hemodialysis.

Mohamed El-sakhawy, Naglaa; Said Sabry, Samah; Abd Allah Morsi Afify, Huda

doi:10.21608/jnsbu.2025.435252

Burden of Care among Family Caregivers of Children with Hemodialysis.

Authors

¹ Nursing supervisor in Tanta Fever Hospital‚ Egypt

² Professor of Community Health Nursing, Faculty of Nursing, Benha University, Egypt

³ Assist Professor of Community Health Nursing, Faculty of Nursing, Benha University, Egypt.

10.21608/jnsbu.2025.435252

Abstract

Background: Hemodialysis is a procedure that collects extra fluids and wastes using a membrane in place of the kidney as a filter. The children undergoing hemodialysis need caregiver support for several years which cause high level of burden. Aim: Was to assess the burden of care among family caregivers of children with hemodialysis. Design: A descriptive research design was utilized. Setting: The study was conducted at Pediatric hemodialysis unit at Benha University Hospital in Benha City and at Pediatric hemodialysis unit at Tanta University Student Hospital in Tanta City. Sample: A convenient sample which included 65 children with hemodialysis and their family caregivers. Tools: Tool I: A structured interview questionnaire which consisted of four parts to assess the socio-demographic characteristics, medical history, knowledge of the studied caregivers regarding hemodialysis and reported practices related to daily living assistance of children with hemodialysis. Tool II: Pediatric Renal Caregiver Burden Scale (PR-CBS). Results: showed that; 47.7 % of the studied children aged from 12 to less than 18 years old and 58.5 % of them were female. 63.1% of the studied family caregivers aged from 30 to less than 40 years old. 70.8% of them were female and 93.8% were married. Conclusion: Less than one third of the studied family caregivers had good total knowledge regarding hemodialysis, more than half of them had satisfactory total reported practices regarding care of their children with hemodialysis. More than half of the studied family caregivers were in the high burden category There were statistically significant correlation between the total knowledge score of the studied family caregivers, total reported practices score and total burden score. Recommendations: Educational programs should be implemented for family caregivers to improve family caregivers knowledge and practice.

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