Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy

Hussien Ghoniem, Sabrien; Abd El-Gawad Abd El-Megeed, Hanaa; Elahmady Mohamed, Ahlam; Gamal Eldein Ibraheim, Shimaa

doi:10.21608/jnsbu.2023.310952

Knowledge, Attitudes and Practices of Mothers regarding their Children with Spinal Muscular Atrophy

Document Type : Scientific peer reviewed journal

Authors

¹ A Member of the development team at the Directorate of Health Affairs in Gharbia

² Professor of Community Health Nursing, Faculty of Nursing, Benha University

³ Assistant Professor of Community Health Nursing, Faculty of Nursing, Benha University

⁴ Lecturer of Community Health Nursing, Faculty of Nursing, Benha University.

10.21608/jnsbu.2023.310952

Abstract

Background: Spinal Muscular Atrophy (SMA) is a genetic disease affecting the central nervous system and voluntary muscle movement (skeletal muscle). This study aimed: Was to assess knowledge, attitudes and practices of mothers regarding their children with spinal muscular atrophy. Research design: A descriptive research design was used in carrying out this study. Setting: The study was conducted at Hassan Awad Health Insurance Clinic in Banha City. Sample: Purposive sample of 100 mothers and their children with SMA. Tools: Three tools were used. Tool 1: Consisted two parts: Part (1): An interviewing questionnaire consisted to assess socio-demographic data of studied sample, and personal characteristics of preschool children with spinal muscular atrophy. Part (2) Mothers` knowledge regarding SMA. Tool (II) Mothers` attitude likert scale. Tool (III): Reported practices of mother regarding their children with SMA. Results: 36.0% of the children with SMA were aged from 1< 3 years . 93.0% of studied children had motor problems of difficult standing. 60.0 % of mothers had poor total level of knowledge regarding spinal muscular atrophy,66.0 % of them had negative attitude and 53.0 % of studied mothers had unsatisfactory total reported practices. Conclusion: Most of studied children had motor problems of difficulty standing, There were statistically significant correlation between studied mother`s total knowledge, total attitude and total reported practices. Recommendations: Health education program should be given for mothers about SMA to enhance their knowledge, attitude and practices regarding disease.

Keywords