Effect of an Educational Program on Self-Care Management for Patients with Sickle Cell Disease

Mohammed, Eman Abd Elmoety; Hegazy, Marwa Moustafa; Ali, Heba Abdel-Kader; Abu El-fadl, Nehal Mahmoud

doi:10.21608/jnsbu.2021.159649

Effect of an Educational Program on Self-Care Management for Patients with Sickle Cell Disease

Document Type : Scientific peer reviewed journal

Authors

¹ Medical Surgical Nursing, Faculty of Nursing, Al Azhar University, Egypt

² Medical Surgical Nursing, Faculty of Nursing, Benha University, Egypt

³ Medical Surgical Nursing. Faculty of Nursing, Benha University, Egypt

10.21608/jnsbu.2021.159649

Abstract

Background: Sickle cell disease (SCD) is a chronic genetic disease, which causes many
complications through the patient's life; self-care is an important aspect of managing a chronic
disease. In SCD, self-care contributes to patients' pain management and prevention of pain crisis.
The aim of this study was to evaluate the effect of an educational program on self-care
management for patients with sickle cell disease, Design: Quasi-experimental research design.
Setting: this study was conducted in hematology departments at Benha University Hospital &
Nasser Institute. Study subjects: A convenient sample of all available patients (n=50) were
included in this study. Data collection tools: two interview questionnaires: 1) Patients assessment
questionnaire includes (socio demographic data, medical history & patients' knowledge about SCD.
2) Routine Self- Care Questionnaire includes (A-Jenerette Self-care Assessment questionnaire & BSickle Cell Self-Efficacy Scale questionnaire). Results of the study revealed that: The majority of
patients had unsatisfactory knowledge scores pre-program implementation, when more than two
thirds of them had satisfactory knowledge score immediately post program implementation and
nearly two thirds of them had satisfactory knowledge three months follow-up the program,
concerning self-care, the majority of studied patients had unsatisfactory total self-care scores at preprogram implementation, while nearly three quarters of them had satisfactory total self-care scores
one month post program implementation and nearly two thirds of them had satisfactory total selfcare score three months follow-up program implementation and regarding self-efficacy, the
majority of studied patients had unsatisfactory self-efficacy scores at pre-program implementation,
while nearly three quarters of them had satisfactory scores one month post program implementation
and more than two thirds of them had satisfactory self-efficacy follow-up program implementation.
Conclusion: The study concluded that there were statistically significant improvement in patients’
knowledge, self-care & self-efficacy post & follow-up educational program implementation.
Recommendations: This study recommended that performing continuous monitoring, evaluating
self-care practice for sickle cell disease patients for early detecting and solving problem.
Researchers should implementing further educational programs for improving patients’ self-care
and self-efficacy skills.

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